Older Publications

This page consists of papers published by the National ALS Registry or using Registry data that is older than 5 years

Publications

Early life metal dysregulation in amyotrophic lateral sclerosis

Keratinous biomarker of mercury exposure associated with amyotrophic lateral sclerosis risk in a nationwide U.S. study

Neurologists Call for ALS Registry to Research Environmental Toxins Associated with Disease

The Use of Telehealth to Enhance Care in ALS and other Neuromuscular Disorders

Voicing the Need for Amyotrophic Lateral Sclerosis Environmental Research

Comparison of the clinical and genetic features of amyotrophic lateral sclerosis across Cuban, Uruguayan and Irish clinic-based populations

High plasma concentrations of organic pollutants negatively impact survival in amyotrophic lateral sclerosis

Estimation of environmental exposure: interpolation, kernel density estimation or snapshotting

Clinical characteristics of a large cohort of US participants enrolled in the National Amyotrophic Lateral Sclerosis (ALS) Registry, 2010â€“2015

Amyotrophic lateral sclerosis among patients with a Medicare Advantage prescription drug plan; prevalence, survival and patient characteristics

Toenail mercury levels are associated with amyotrophic lateral sclerosis (ALS) risk

Shared polygenic risk and causal inferences in Amyotrophic Lateral Sclerosis

Atlanta metropolitan area amyotrophic lateral sclerosis (ALS) surveillance: incidence and prevalence 2009 â€“ 2011 and survival characteristics through 2015

Estimation of the prevalence of amyotrophic lateral sclerosis in the United States using national administrative healthcare data from 2002 to 2004 and capture-recapture methodology

Gene-Environment-Time Interactions in Neurodegenerative Diseases: Hypotheses and Research Approaches

A comparison of mercury exposure from seafood consumption and dental amalgam fillings in people with and without Amyotrophic Lateral Sclerosis (ALS): an International online case-control study

Amyotrophic lateral sclerosis mortality in the United States, 2011-2014

Are people with amyotrophic lateral sclerosis (ALS) particularly nice? An international online case-control study of the Big Five personality factors

Prevalence of Amyotrophic Lateral Sclerosis--United States, 2015

Prevalence of amyotrophic lateral sclerosis -- United States, 2014

Is psychological stress a predisposing factor for amyotrophic lateral sclerosis (ALS)? An online international case-control study of premorbid life events, occupational stress, resilience and anxiety

Increasing patient self-enrollment in the National Amyotrophic Lateral Sclerosis Registry: lessons learned from a direct to provider campaign

Assessing cyanobacterial harmful algal blooms as risk factors for amyotrophic lateral sclerosis

Environmental and occupational exposures and amyotrophic lateral sclerosis in New England

Evaluating the completeness of the national ALS registry, United States

Medical history of chemotherapy or immunosuppressive drug treatment and risk of amyotrophic lateral sclerosis

CDC Grand Rounds: National Amyotrophic Lateral Sclerosis (ALS) Registry impact, challenges, and future directions

Complete hazard ranking to analyze right-censored data: An ALS survival study

Does the index-to-ring finger length ratio (2D:4D) differ in amyotrophic lateral sclerosis (ALS)? Results from an international online caseâ€“control study

A spatial analysis of amyotrophic lateral sclerosis (ALS) cases in the United States and their proximity to multidisciplinary ALS clinics, 2013

The Power of Many: Data from patient registries help advance research and improve care

Patients with sporadic and familial amyotrophic lateral sclerosis found value in genetic testing

Non-Familial ALS: A tangled web

Variation in worldwide incidence of amyotrophic lateral sclerosis: a meta-analysis

Patients with amyotrophic lateral sclerosis have high interest in and limited access to genetic testing

Association of environmental toxins with amyotrophic lateral sclerosis

Integrating a biorepository into the National Amyotrophic Lateral Sclerosis Registry

Longitudinal imaging in C9orf72 mutation carriers: Relationship to phenotype

Preliminary results of National Amyotrophic Lateral Sclerosis (ALS) Registry risk factor survey data

Prevalence of amyotrophic lateral sclerosis -- United States, 2012-2013

Race/ethnicity, socioeconomic status, and ALS mortality in the United States

The role of mental health and self-efficacy in the pain experience of patients with amyotrophic lateral sclerosis

National Amyotrophic Lateral Sclerosis (ALS) Biorepository feasibility study

Effects of demographic factors on survival time after a diagnosis of amyotrophic lateral sclerosis

Epidemiology and surveillance of amyotrophic lateral sclerosis in two large metropolitan areas in California

Geographic variation of amyotrophic lateral sclerosis incidence in New Jersey, 2009-2011

Military service and amyotrophic lateral sclerosis in a population-based cohort

Potential environmental factors in amyotrophic lateral sclerosis

Updated prevalence and demographic characteristics for ALS cases in Texas, 2009-2011

Prevalence of amyotrophic lateral sclerosis--United States, 2010-2011

Designing an internationally accessible web-based questionnaire to discover risk factors for amyotrophic lateral sclerosis: A case-control study

Results of Florida's Amyotrophic Lateral Sclerosis Surveillance Project, 2009-2011

State and metropolitan area-based amyotrophic lateral sclerosis (ALS) surveillance

Amyotrophic lateral sclerosis surveillance in Baltimore and Philadelphia

Survival and cause of death among a cohort of confirmed amyotrophic lateral sclerosis cases

Update on the United States National Amyotrophic Lateral Sclerosis (ALS) Registry

Feasibility of creating a National ALS Registry using administrative data in the United States

Population-based surveillance of amyotrophic lateral sclerosis in New Jersey, 2009-2011

Prevalence of amyotrophic lateral sclerosis -- United States, 2010-2011

Racial and ethnic differences among amyotrophic lateral sclerosis (ALS) cases in the United States

The National ALS Registry: a recruitment tool for research

Quantifying a non-notifiable disease in the United States: The National Amyotrophic Lateral Sclerosis Registry model

Environmental risk factors and amyotrophic lateral sclerosis (ALS): a case-control study of ALS in Michigan

Current pathways for epidemiological research in amyotrophic lateral sclerosis

Infrastructure resources for clinical research in amyotrophic lateral sclerosis

Utility of capture-recapture methodology to assess completeness of amyotrophic lateral sclerosis case ascertainment

The National Amyotrophic Lateral Sclerosis (ALS) Registry

Accuracy and usefulness of ICD-10 death certificate coding for the identification of patients with ALS: results from the South Carolina ALS Surveillance Pilot Project

Preparing for a U.S. National ALS Registry: Lessons from a pilot project in the State of Georgia

Validity of hospital discharge data for identifying cases of amyotrophic lateral sclerosis

Sept. 10, 2026

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About This Page

Published: January 10, 2025

Updated: January 7, 2025

This page was last updated on this date. Updates may include minor edits, image changes, or other modifications to page content.

Reviewed: September 10, 2026

The information on this page was last reviewed by subject matter experts to ensure accuracy.

Older Publications

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Older Publications

At a glance

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National ALS Registry

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